The last week, Felix was really struggling with tube feeds, and his gag reflex and vomiting reflex was back on a hair trigger. Bending over, a bad smell or a tantrum and sometimes nothing obvious would bring up a whole feed. His cough is a lot better and yet he vomited every day from Tuesday to Friday, mostly in the evening just after his last feed, or in the night. Once it was because of the toothbrush touching the back of his mouth. And so by Friday, I thought that if he is losing a quarter of his daily intake, we might as well see what happens if we only give him 3/4 to begin with. It has worked a treat. He has more zip, he is more interested in food, and he has not vomited. Day three of the new regime, and all good so far. Of course, his calorie requirement is probably greater because his heart is working hard and his breathing rate is on the high side of normal, and he is taking in less calories. This will probably affect his weight gain and his growth. But right now, I think not vomiting is the most important thing. He seems to have more energy than he had, probably because he is not feeling generally nauseous any more. And more importantly, he is not nauseated by food. He had his nose in a pesto jar for most of the afternoon. He said it smelled lovely and wanted to know what it was made from. I had to bite my tongue to not say ‘Why don’t you try some?’ or ‘It is great on pasta’ or ‘Do you want a spoon to stick in it?’. I had to let him approach this new food on his own terms. He has had a few chips, a few bites of cheese and a sip or two of milk today. So, I am just going to see how it goes.